Enacts Aidan's law to require adrenoleukodystrophy screening of newborns.
Sponsor: RULES COM Brennan
Committee: HEALTH
Law Section: Public Health Law
Law: Amd S2500-a, Pub Health L
Law Section: Public Health Law
Law: Amd S2500-a, Pub Health L
A10813-2011 Actions
- Sep 10, 2012: referred to health
A10813-2011 Text
S T A T E O F N E W Y O R K
________________________________________________________________________
10813
I N ASSEMBLY
September 10, 2012
___________
Introduced by COMMITTEE ON RULES -- (at request of M. of A. Brennan) --
read once and referred to the Committee on Health
AN ACT to amend the public health law, in relation to requiring adreno-
leukodystrophy screening of newborns
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
Section 1. This act shall be known and may be cited as "Aidan's Law".
S 2. Subdivision (a) of section 2500-a of the public health law, as
amended by chapter 863 of the laws of 1986, is amended to read as
follows:
(a) It shall be the duty of the administrative officer or other person
in charge of each institution caring for infants twenty-eight days or
less of age and the person required in pursuance of the provisions of
section forty-one hundred thirty of this chapter to register the birth
of a child, to cause to have administered to every such infant or child
in its or his care a test for phenylketonuria, homozygous sickle cell
disease, hypothyroidism, branched-chain ketonuria, galactosemia, homo-
cystinuria, ADRENOLEUKODYSTROPHY and such other diseases and conditions
as may from time to time be designated by the commissioner in accordance
with rules or regulations prescribed by the commissioner. Testing, the
recording of the results of such tests, tracking, follow-up reviews and
educational activities shall be performed at such times and in such
manner as may be prescribed by the commissioner. The commissioner shall
promulgate regulations setting forth the manner in which information
describing the purposes of the requirements of this section shall be
disseminated to parents or a guardian of the infant tested.
S 3. This act shall take effect on the one hundred eightieth day after
it shall have become a law; provided, however, that effective immediate-
ly, the addition, amendment and/or repeal of any rule or regulation
necessary for the implementation of this act on its effective date are
authorized and directed to be made and completed on or before such
effective date.
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD16444-01-2

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