S T A T E   O F   N E W   Y O R K
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                                  4262

                       2013-2014 Regular Sessions

                          I N  A S S E M B L Y

                            February 1, 2013
                               ___________

Introduced  by  M.  of A. RAIA, FINCH, RABBITT, MONTESANO -- Multi-Spon-
  sored by -- M. of  A.    BARCLAY,  GIGLIO,  HAWLEY,  KOLB,  McDONOUGH,
  PALMESANO,  SALADINO,  STEVENSON,  TEDISCO,  TENNEY  --  read once and
  referred to the Committee on Aging

AN ACT to amend the elder law, in relation  to  creating  the  New  York
  state lifespan respite care program

  THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:

  Section 1.  Legislative  intent.  The  legislature  hereby  finds  and
declares that supporting the efforts of families and caregivers who care
for  individuals with special needs at home is efficient, cost effective
and humane. Families receiving occasional respite care relief  are  less
likely to request admission of an individual with special needs to nurs-
ing  homes,  foster  care  or  other out-of-home care at public expense.
Respite care reduces family and caregiver stress,  enhances  family  and
caregiver  coping  ability  and  strengthens  family ability to meet the
challenging demands  of  caring  for  individuals  with  special  needs.
Respite  care  reduces  the risk of abuse and neglect of senior citizens
and other vulnerable groups. Coordinated, non-categorical  respite  care
services must be available locally to provide reliable short-term relief
when  it  is  needed by families and caregivers regardless of where they
live in New York state.
  Therefore, the legislature finds that a statewide centralized  program
to  provide  direction,  resources and support for the establishment and
operation of community-based respite care programs would serve a purpose
beneficial to all the citizens of New York state.
  S 2. The elder law is amended by adding a new section 215-c to read as
follows:
  S 215-C. LIFESPAN RESPITE  CARE.  1.  DEFINITIONS.  AS  USED  IN  THIS
SECTION, THE FOLLOWING WORDS SHALL HAVE THE FOLLOWING MEANINGS:

 EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                      [ ] is old law to be omitted.
                                                           LBD05015-01-3

              

A. 4262                             2

  (A) "CAREGIVER" SHALL MEAN AN INDIVIDUAL PROVIDING ONGOING CARE FOR AN
INDIVIDUAL WITH SPECIAL NEEDS.
  (B)  "COMMUNITY  LIFESPAN RESPITE CARE PROGRAM" SHALL MEAN A NON-CATE-
GORICAL RESPITE CARE PROGRAM THAT:
  (1) IS OPERATED BY COMMUNITY-BASED PRIVATE NON-PROFIT,  FOR-PROFIT  OR
PUBLIC AGENCIES THAT PROVIDE RESPITE CARE SERVICES;
  (2) SERVES AN AREA OF ONE OR MORE COUNTIES;
  (3) ACTS AS A SINGLE LOCAL SOURCE OF INFORMATION AND REFERRAL; AND
  (4) FACILITATES ACCESS TO LOCAL RESPITE CARE SERVICES.
  (C)  "NEW  YORK  STATE  LIFESPAN  RESPITE CARE PROGRAM" SHALL MEAN THE
PROGRAM ESTABLISHED IN THE STATE OFFICE FOR THE AGING PURSUANT TO SUBDI-
VISION TWO OF THIS SECTION HEREINAFTER REFERRED TO AS "THE PROGRAM".
  (D) "NON-CATEGORICAL CARE" SHALL  MEAN  CARE  WITHOUT  REGARD  TO  THE
STATUS,  INCLUDING  BUT NOT LIMITED TO, AGE AND TYPE OF SPECIAL NEED, OF
THE INDIVIDUAL RECEIVING CARE.
  (E) "PROVIDER" SHALL MEAN INDIVIDUAL OR AGENCY SELECTED BY A FAMILY OR
CAREGIVER TO PROVIDE RESPITE CARE TO AN INDIVIDUAL WITH SPECIAL NEEDS.
  (F) "RESPITE CARE" SHALL MEAN THE PROVISION OF  SHORT-TERM  RELIEF  TO
PRIMARY  CAREGIVERS  FROM  THE DEMANDS OF ONGOING CARE FOR AN INDIVIDUAL
WITH SPECIAL NEEDS.
  (G) "RESPITE CARE SERVICES" SHALL INCLUDE:
  (1) RECRUITING AND SCREENING OF PAID AND UNPAID RESPITE  CARE  PROVID-
ERS;
  (2)  IDENTIFYING  LOCAL  TRAINING  RESOURCES  AND  ORGANIZING TRAINING
OPPORTUNITIES FOR RESPITE CARE PROVIDERS;
  (3) MATCHING OF FAMILIES AND CAREGIVERS WITH PROVIDERS AND OTHER TYPES
OF RESPITE CARE;
  (4) LINKING FAMILIES AND CAREGIVERS WITH PAYMENT RESOURCES;
  (5) IDENTIFYING, COORDINATING AND DEVELOPING THE  COMMUNITY  RESOURCES
FOR RESPITE CARE;
  (6) QUALITY ASSURANCE AND EVALUATION; AND
  (7)  ASSISTING  FAMILIES AND CAREGIVERS TO IDENTIFY RESPITE CARE NEEDS
AND RESOURCES.
  (H) "SPECIAL NEEDS" INCLUDES:
  (1) ALZHEIMER'S DISEASE AND RELATED DISORDERS;
  (2) DEVELOPMENTAL DISABILITIES;
  (3) PHYSICAL DISABILITIES;
  (4) CHRONIC ILLNESS;
  (5) MENTAL AND EMOTIONAL CONDITIONS THAT REQUIRE SUPERVISION;
  (6) SITUATIONS IN WHICH A HIGH RISK OF ABUSE OR NEGLECT EXISTS; AND
  (7) SUCH OTHER SITUATIONS OR CONDITIONS AS THE OFFICE MAY FROM TIME TO
TIME ESTABLISH.
  2. THE NEW YORK STATE LIFESPAN RESPITE CARE PROGRAM  ESTABLISHED.  (A)
THE  DIRECTOR  IS  AUTHORIZED AND DIRECTED TO PROMULGATE RULES AND REGU-
LATIONS TO ESTABLISH THE NEW YORK STATE LIFESPAN  RESPITE  CARE  PROGRAM
FOR  THE PURPOSE OF DEVELOPING AND ENCOURAGING STATEWIDE COORDINATION OF
RESPITE CARE AND TO WORK WITH  COMMUNITY-BASED  PRIVATE  NOT-FOR-PROFIT,
FOR-PROFIT  OR  PUBLIC  AGENCIES AND INTERESTED CITIZEN GROUPS TO FOSTER
THE ESTABLISHMENT OF RECOGNIZED COMMUNITY LIFESPAN RESPITE CARE PROGRAMS
PURSUANT TO SUBDIVISION THREE OF THIS SECTION.
  (B) THE PROGRAM SHALL:
  (1) PROVIDE POLICY AND PROGRAM DEVELOPMENT SUPPORT, INCLUDING BUT  NOT
LIMITED TO DATA COLLECTION AND OUTCOME MEASURES;
  (2)  IDENTIFY  AND  PROMOTE RESOLUTION OF LOCAL AND STATE LEVEL POLICY
CONCERNS;

A. 4262                             3

  (3) PROVIDE TECHNICAL ASSISTANCE TO COMMUNITY  LIFESPAN  RESPITE  CARE
PROGRAMS;
  (4) DEVELOP AND DISTRIBUTE RESPITE CARE INFORMATION;
  (5)  PROMOTE  THE EXCHANGE OF INFORMATION AND COORDINATION AMONG STATE
AND LOCAL GOVERNMENT, COMMUNITY LIFESPAN RESPITE CARE PROGRAMS, AGENCIES
SERVING INDIVIDUALS WITH SPECIAL NEEDS, FAMILIES AND RESPITE CARE  ADVO-
CATES TO ENCOURAGE EFFICIENT PROVISION OF RESPITE CARE AND REDUCE DUPLI-
CATION OF EFFORT;
  (6)  ENSURE  STATEWIDE  ACCESS  TO  COMMUNITY  LIFESPAN  RESPITE  CARE
PROGRAMS, PARTICULARLY IN RURAL AREAS; AND
  (7) MONITOR AND EVALUATE IMPLEMENTATION OF COMMUNITY LIFESPAN  RESPITE
CARE PROGRAMS.
  (C)  THE  DIRECTOR  SHALL  APPOINT  AN ADVISORY COUNCIL TO THE PROGRAM
WHICH SHALL BE COMPOSED OF QUALIFIED INDIVIDUALS INCLUDING RESPITE  CARE
PROVIDERS, RESPITE CARE PROGRAM MANAGERS, RESPITE CARE CONSUMERS, FAMILY
MEMBERS AND OTHER INTERESTED INDIVIDUALS.
  3. COMMUNITY LIFESPAN RESPITE CARE PROGRAMS. (A) THE DIRECTOR, THROUGH
THE  PROGRAM  ESTABLISHED  PURSUANT  TO SUBDIVISION TWO OF THIS SECTION,
SHALL COORDINATE THE ESTABLISHMENT OF COMMUNITY  LIFESPAN  RESPITE  CARE
PROGRAMS. THE PROGRAM SHALL ACCEPT PROPOSALS TO OPERATE COMMUNITY LIFES-
PAN  RESPITE CARE PROGRAMS, SUBMITTED IN THE FORM AND MANNER REQUIRED BY
THE DIRECTOR, FROM COMMUNITY BASED PRIVATE NOT-FOR-PROFIT, FOR-PROFIT OR
PUBLIC AGENCIES THAT PROVIDE RESPITE CARE SERVICES. ACCORDING TO  CRITE-
RIA  ESTABLISHED  BY  THE  OFFICE,  THE PROGRAM SHALL DESIGNATE AGENCIES
DESCRIBED IN THIS SUBDIVISION AS OPERATORS  OF  COMMUNITY  RESPITE  CARE
PROGRAMS.
  (B)  NO  LATER  THAN  THE  FIRST OF JANUARY, TWO THOUSAND THIRTEEN THE
OFFICE SHALL DESIGNATE AT LEAST TWELVE OPERATORS  OF  COMMUNITY  RESPITE
CARE  PROGRAMS STATEWIDE.  NO LATER THAN THE FIRST OF JANUARY, TWO THOU-
SAND FIFTEEN THE OFFICE SHALL ENSURE THE DESIGNATION  OF  AT  LEAST  ONE
OPERATOR OF COMMUNITY RESPITE CARE PROGRAMS IN EACH COUNTY IN THE STATE.
  (C)  COMMUNITY  LIFESPAN RESPITE CARE PROGRAMS ESTABLISHED PURSUANT TO
THIS SUBDIVISION SHALL:
  (1) INVOLVE KEY LOCAL INDIVIDUALS AND AGENCIES IN THE COMMUNITY LIFES-
PAN RESPITE CARE PROGRAM PLANNING PROCESS;
  (2) INCLUDE A FLEXIBLE ARRAY OF RESPITE  CARE  OPTIONS  RESPONSIVE  TO
FAMILY  AND CAREGIVER NEEDS AND AVAILABLE BEFORE FAMILIES AND CAREGIVERS
ARE IN A CRISIS SITUATION;
  (3) BE SENSITIVE TO THE  UNIQUE  NEEDS,  STRENGTHS  AND  MULTICULTURAL
VALUES OF AN INDIVIDUAL, FAMILY OR CAREGIVER;
  (4) OFFER THE MOST EFFICIENT ACCESS TO AN ARRAY OF COORDINATED RESPITE
CARE  SERVICES  THAT  ARE  BUILT  ON  EXISTING  COMMUNITY  SUPPORTS  AND
SERVICES;
  (5) BE DRIVEN BY COMMUNITY STRENGTHS, NEEDS AND RESOURCES; AND
  (6) USE A VARIETY OF FUNDS AND RESOURCES, INCLUDING  BUT  NOT  LIMITED
TO:
  (I) FAMILY OR CAREGIVER FUNDS;
  (II) PRIVATE AND VOLUNTEER RESOURCES;
  (III) PUBLIC FUNDS INCLUDING AVAILABLE FEDERAL MONIES; AND
  (IV) EXCHANGE OF CARE AMONG FAMILIES OR CAREGIVERS;
  (7) CREATE AN ADVISORY COMMITTEE COMPOSED OF FIFTEEN MEMBERS TO ADVISE
THE  COMMUNITY LIFESPAN RESPITE CARE PROGRAM ON HOW THE PROGRAM MAY BEST
SERVE THE NEEDS OF FAMILIES AND CAREGIVERS OF INDIVIDUALS  WITH  SPECIAL
NEEDS.  AT LEAST EIGHT MEMBERS OF SUCH ADVISORY COMMITTEE SHALL BE FAMI-
LY  MEMBERS  AND  CAREGIVERS  OF INDIVIDUALS WITH SPECIAL NEEDS.   OTHER
MEMBERS SHALL INCLUDE RESPITE CARE PROVIDERS, REPRESENTATIVES  OF  LOCAL

A. 4262                             4

SERVICE AGENCIES AND OTHER COMMUNITY REPRESENTATIVES.  COMMITTEE MEMBER-
SHIP  SHALL  REPRESENT  SENIOR CITIZENS, INDIVIDUALS WITH SPECIAL NEEDS,
AND FAMILIES AT RISK OF ABUSE OR NEGLECT.
  4.  RULES  AND REGULATIONS. THE DIRECTOR IS HEREBY DIRECTED TO PROMUL-
GATE ANY RULES AND REGULATIONS NECESSARY FOR THE OPERATION AND  ADMINIS-
TRATION  OF THE NEW YORK STATE RESPITE CARE PROGRAM ESTABLISHED PURSUANT
TO SUBDIVISION TWO OF THIS SECTION, INCLUDING BUT NOT LIMITED TO:
  (A) ESTABLISHING CRITERIA, PROCEDURES AND TIME LINES  FOR  DESIGNATION
OF  THE  COMMUNITY  BASED  PRIVATE NOT-FOR-PROFIT, FOR-PROFIT, OR PUBLIC
AGENCIES THAT WILL BE DESIGNATED AS  RECOGNIZED  PROVIDERS  OF  SERVICES
UNDER COMMUNITY LIFESPAN RESPITE CARE PROGRAMS; AND
  (B)  REQUIRING THAT COMMUNITY LIFESPAN RESPITE CARE PROGRAMS PUBLICIZE
THE TELEPHONE NUMBER AND  ADDRESS  WHERE  FAMILIES  AND  CAREGIVERS  MAY
CONTACT THE STATE PROGRAM.
  S 3. This act shall take effect on the one hundred eightieth day after
it shall have become a law; provided, however, that effective immediate-
ly  the  addition,  amendment  and/or  repeal  of any rule or regulation
necessary for the implementation of this act on its effective  date  are
authorized  and  directed  to  be  made  and completed on or before such
effective date.