Resolution J1791-2013

Recognizing September 23, 2013, as National Restless Legs Syndrome - Willis-Ekbom Disease Awareness Day

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  • May 21, 2013: ADOPTED
  • May 21, 2013: REPORTED TO CALENDAR FOR CONSIDERATION
  • May 10, 2013: REFERRED TO FINANCE

Text

LEGISLATIVE RESOLUTION recognizing September 23, 2013, as National Rest-
less Legs Syndrome - Willis-Ekbom Disease Awareness Day

WHEREAS, It is the custom of this Legislative Body to recognize official
days that are set aside to increase awareness of serious conditions that
affect the lives of citizens of New York State; and
  WHEREAS,  Attendant to such concern, and in full accord with its long-
standing traditions, it is the sense of this Legislative Body to  recog-
nize September 23, 2013, as National Restless Legs Syndrome - Willis-Ek-
bom Disease Awareness Day; and
  WHEREAS,  Restless  Legs Syndrome, also known as Willis-Ekbom disease,
is a neurological disorder characterized by unpleasant sensations in the
legs and a distressing, irresistible urge to move them; and
  WHEREAS, An estimated 10 million adults in the  United  States,  three
percent  of  the  country,  and  millions  of others worldwide have been
affected by Restless Legs Syndrome, a disease  for  which  there  is  no
known cure; and
  WHEREAS, The diagnostic accuracy of Restless Legs Syndrome is an issue
among  clinicians;  of  those  meeting  the  criteria  for Restless Legs
Syndrome in the  Restless  Legs  Syndrome  Epidemiology,  Symptoms,  and
Treatment  (REST)  study,  only 6.2% of patients received a diagnosis of
Willis-Ekbom disease; and
  WHEREAS, Symptoms typically include an urge to move the legs caused by
uncomfortable and unpleasant sensations in the legs, presenting or wors-
ening in the evening or night, and daytime  symptoms  of  Restless  Legs
Syndrome have been established; and
  WHEREAS, Restless Legs Syndrome has an impact on sleep, concentration,
and  work  productivity;  with  68.6%  of  patients needing more than 30
minutes (generally regarded as pathologic) to initiate sleep  and  60.1%
waking  three  or more times per night; with 49.7% of patients reporting
that symptoms adversely affect next day concentration; and with patients
with moderate-to-severe Restless Legs Syndrome having  an  overall  mean
loss of workplace productivity of 1 day per 40-hour work week; and
  WHEREAS,  Increased  awareness and expanded knowledge of the realities
of life with Restless Legs Syndrome will allow the community at large to
better support people who struggle with the challenges  of  this  condi-
tion; and
  WHEREAS,  The Restless Legs Syndrome Foundation, a nonprofit organiza-
tion, and other groups throughout the United States have joined together
to promote  Restless  Legs  Syndrome  awareness  and  support  including
improved education, diagnosis, research, and treatment; and
  WHEREAS,  The Restless Legs Syndrome Foundation is urging patients and
their supporters, healthcare providers, and the general public to demon-
strate their caring by sharing the road patients walk, the  facts  about
Restless Legs Syndrome, and ever-growing awareness about the etiology of
this disorder and treatments; and
  WHEREAS,  It  is  imperative that there be greater public awareness of
this serious health condition, and more must be done to increase  activ-
ity at the local, State and national levels; now, therefore, be it
  RESOLVED,  That  this  Legislative  Body pause in its deliberations to
recognize September 23, 2013,  as  National  Restless  Legs  Syndrome  -
Willis-Ekbom  Disease Awareness Day, and to urge all citizens to support
the search for a cure and assist those individuals and families who deal
with this condition on a daily basis; and be it further
  RESOLVED, That a copy of this Resolution, suitably engrossed, be tran-
smitted to The Restless Legs Syndrome Foundation.

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