LEGISLATIVE RESOLUTION commending Pietrosfight.org upon the occasion of
hosting its Fight Night event on March 7, 2013

WHEREAS, It is the sense of this Legislative Body to recognize that the
quality and character of life in the communities across New York State
are reflective of the concerned and dedicated efforts of those organiza-
tions and individuals who would devote themselves to the welfare of the
community and its citizenry; and
WHEREAS, Attendant to such concern, and in full accord with its long-
standing traditions, this Legislative Body is justly proud to commend
Pietrosfight.org upon the occasion of hosting its Fight Night event on
Thursday, March 7, 2013, at El Caribe Country Club in Brooklyn, New
York; and
WHEREAS, Pietrosfight.org is a nonprofit organization dedicated to
raising awareness and funds to help find a cure for Duchenne Muscular
Dystrophy; and
WHEREAS, This crucial organization was founded by Manni and Dayna
Scarso in 2012, after they learned their 3-year-old son, Pietro, was
diagnosed with Duchenne Muscular Dystrophy; and
WHEREAS, Duchenne Muscular Dystrophy is the most common and lethal
childhood genetic disorder in the world, affecting one in every 3,500
male births; most patients are confined to a wheelchair by the time they
are 12 years of age, and succumb to the disease in their late teens due
to respiratory complications; and
WHEREAS, Currently, there is no acceptable treatment or cure for Duch-
enne Muscular Dystrophy; and
WHEREAS, Overcoming unimaginable adversity, Dayna and Manni Scarso
were determined to save Pietro and the thousands of boys like him by
establishing a foundation focused on searching for and funding Duchenne
Muscular Dystrophy research that will ultimately cure this deadly
disease; and
WHEREAS, The funds raised by Pietrosfight.org help to support the most
promising research programs aimed at treating and curing Duchenne Muscu-
lar Dystrophy; and
WHEREAS, For the first time since the discovery of Duchenne Muscular
Dystrophy, there is hope to find a cure for this destructive disease in
time to save Pietro Scarso and many other boys and their families; and
WHEREAS, Exhibiting the same indomitable spirit as his parents, Pietro
Scarso looks beyond his own struggles and pain, focusing his energies on
how he can help others; he recently received the No. 1 Sharer Award in
his nursery school program because if someone falls, he is right there
to wipe their tears and pick them up; and
WHEREAS, It is imperative that there be greater public awareness of
this serious health issue, and more must be done to increase activity at
the local, State and national levels to support and protect our youth,
our most precious resource, as well as their families; now, therefore,
be it
RESOLVED, That this Legislative Body pause in its deliberations to
commend Pietrosfight.org upon the occasion of hosting its Fight Night
event on March 7, 2013; and be it further
RESOLVED, That this Legislative Body pause further to urge the FDA to
move expeditiously to approve new drugs in order to effectuate a cure
for Duchenne Muscular Dystrophy; and be it further
RESOLVED, That a copy of this Resolution, suitably engrossed, be tran-
smitted to Manni and Dayna Scarso, Pietrosfight.org.