Resolution J309-2013

Memorializing Governor Andrew M. Cuomo to proclaim February 14, 2013, as Hunter's Day of Hope and Prayer for Children in the State of New York

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Actions

  • Feb 12, 2013: ADOPTED
  • Feb 12, 2013: REPORTED TO CALENDAR FOR CONSIDERATION
  • Feb 11, 2013: REFERRED TO FINANCE

Text

LEGISLATIVE   RESOLUTION  memorializing  Governor  Andrew  M.  Cuomo  to
proclaim February 14, 2013, as Hunter's Day of Hope and Prayer for Chil-
dren in the State of New York

WHEREAS, It is the sense of this Legislative Body to recognize that  the
quality  of life for children in the communities across this great State
of New York is enriched by the concerned and dedicated efforts of  those
organizations  and  individuals of distinction whose singular purpose is
the care and welfare of children; and
  WHEREAS, This Legislative Body is moved  to  proclaim  Hunter  Kelly's
birthday, February 14th, as Hunter's Day of Hope and Prayer for Children
in  the State of New York; on Saturday, February 16, 2013, Hunter's Hope
will host a day of activities and celebration for local families at  the
Buffalo Bills Field House; and
  WHEREAS,  The  Hunter's  Hope  Foundation  was established in 1997, by
Professional Football Hall of Fame member and former Buffalo Bills quar-
terback, Jim Kelly, and his wife, Jill, in honor  of  their  son  Hunter
(2/14/97-8/5/05)  who  was  diagnosed  with Globoid-Cell Leukodystrophy,
more commonly known as Krabbe Disease; and
  WHEREAS, The Kellys started Hunter's Day of Hope and Prayer for  Chil-
dren on February 14, 1998 to celebrate the shared Valentine's Day birth-
day of their son, Hunter James Kelly with his father, Jim Kelly; and
  WHEREAS,  Hunter  Kelly was born on February 14, 1997, and four months
following his birth, was diagnosed with Krabbe Leukodystrophy, an inher-
ited, fatal, nervous system disease; and
  WHEREAS, Hunter Kelly lived to be eight and a half years old, and lost
his life to Krabbe Disease on August 5, 2005; the Kellys have  continued
with  Hunter's  Day  of Hope and Prayer for Children as a celebration of
love, prayer and thanksgiving for all children everywhere; and
  WHEREAS, Hunter's Day of Hope and Prayer for  Children  is  a  special
time  for  families  to  come  together  and spend time having fun while
enjoying music, dancing, games, face painting, and refreshments; at  the
conclusion of the event, there is a special time of prayer for all chil-
dren; and
  WHEREAS,  Hunter's Day of Hope and Prayer for Children is a free event
open to people of all ages, races and walks of life; the celebration has
continued successfully for 15 years and  continues  to  have  dozens  of
sponsors throughout the Western New York Community; and
  WHEREAS,  In  recent years, the event has welcomed approximately 4,000
children and parents annually and has been held  in  the  Buffalo  Bills
Healthy Zone Fieldhouse; and
  WHEREAS,  The  Hunter Day of Hope and Prayer for Children fulfills one
of the primary goals of Hunter's Hope, to  remind  parents  how  blessed
they are to have the gift of children; and
  WHEREAS,  Jill and Jim Kelly hope that through sharing Hunter's story,
they inspire in parents an appreciation of all children and thankfulness
for these precious gifts of life; and
  WHEREAS, Hunter's Hope Foundation is the Kellys lifelong commitment to
increase public awareness of Krabbe Disease and  other  Leukodystrophies
thus  increasing  the  probability  of early detection and treatment; to
gather and provide current, functional information and service  linkages
to  families of children with Leukodystrophies; to fund research efforts
that will identify new treatments, therapies and ultimately, a cure  for
Krabbe  Disease and other Leukodystrophies; and to establish an alliance
of hope that will nourish, affirm  and  confront  the  urgent  need  for
medical,  financial  and  emotional  support of family members and those
afflicted with Leukodystrophies; now, therefore, be it

  RESOLVED, That this Legislative Body pause  in  its  deliberations  to
memorialize  Governor  Andrew M. Cuomo to proclaim February 14, 2013, as
Hunter's Day of Hope and Prayer for Children in New York State;  and  be
it further
  RESOLVED, That copies of this Resolution, suitably engrossed, be tran-
smitted  to  The Honorable Andrew M. Cuomo, Governor of the State of New
York, and the Hunter's Hope Foundation, Orchard Park, New York.

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