Resolution J6061-2013

Memorializing Governor Andrew M. Cuomo to proclaim September 2014, as Chiari Malformation and Syringomyelia Awareness Month in the State of New York

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  • Jun 20, 2014: ADOPTED
  • Jun 20, 2014: REPORTED TO CALENDAR FOR CONSIDERATION
  • Jun 16, 2014: REFERRED TO FINANCE

Text

LEGISLATIVE   RESOLUTION  memorializing  Governor  Andrew  M.  Cuomo  to
proclaim September 2014, as Chiari Malformation and Syringomyelia Aware-
ness Month in the State of New York

WHEREAS, The State of New York takes great  pride  in  participating  in
months of awareness of important health issues; and
  WHEREAS,  Attendant to such concern, and in full accord with its long-
standing traditions, it is the sense of this Legislative Body to memori-
alize Governor Andrew M. Cuomo to proclaim  September  2014,  as  Chiari
Malformation and Syringomyelia Awareness Month in the State of New York;
and
  WHEREAS,  Chiari  Malformation is a condition where part of the brain,
the cerebellar tonsils, descends out of the skull and crowds the  spinal
cord; and
  WHEREAS,  First  identified  by Hans Chiari in the 1890s, the cause is
unknown and is believed to be primarily a congenital condition; and
  WHEREAS, Chiari Malformation leads to a secondary condition,  Syringo-
myelia,  in  some  people;  it is a neurological condition where a fluid
filled cyst, or syrinx, forms in the spinal cord; and
  WHEREAS, The syrinx expands the spinal cord, sometimes  to  more  than
twice  its  normal  diameter, and stretches the nerve tissue paper thin;
and
  WHEREAS, Chiari Malformation is the leading cause of Syringomyelia, so
some people must deal with two sets of problems; and
  WHEREAS, Chiari Malformation symptoms include but are not limited  to:
severe  headaches brought on by coughing and straining; trouble swallow-
ing and sometimes speaking; loss of  fine  motor  control;  and  balance
problems; and
  WHEREAS,  Syringomyelia  symptoms  include  but  are  not  limited to:
extreme pain in neck and shoulders; loss of bladder and  bowel  control;
numbness  in  hands and feet, unable to feel hot and cold; and weakness,
stiffness and pain in arms and legs; and
  WHEREAS,  Chiari  Malformation  and  Syringomyelia  affect  more  than
300,000 people in the United States; and
  WHEREAS,  These devastating diseases are diagnosed by using a combina-
tion of MRI, neurological exam, physician's judgment, and  other  tests;
patients  often  go  five or more years before being properly diagnosed;
and
  WHEREAS, A study of over 300  Chiari  Malformation  and  Syringomyelia
patients  found  approximately 57% had at one time been told by a doctor
they were suffering from a mental or emotional  problem;  many  patients
undergo  serious  brain  surgery  in  an  attempt  to stop symptoms from
progressing; and
  WHEREAS, Research has shown that surgery  can  improve  symptoms  with
approximately an 80% success rate; Chiari Malformation and Syringomyelia
can  place a tremendous physical, mental, emotional, and economic strain
on patients and their families; and
  WHEREAS,  Chiari  Malformation  and  Syringomyelia   Awareness   Month
provides  an  opportunity  to  focus  on  these  significant and complex
diseases, to provide information on and raise public  awareness  of  the
causes,  effects  and  treatments, and to underscore important education
and research efforts surrounding Chiari Malformation and  Syringomyelia;
now, therefore, be it
  RESOLVED,  That  this  Legislative  Body pause in its deliberations to
memorialize Governor Andrew M. Cuomo  to  proclaim  September  2014,  as
Chiari  Malformation  and  Syringomyelia Awareness Month in the State of
New York; and be it further

  RESOLVED, That a copy of this Resolution, suitably engrossed, be tran-
smitted to The Honorable Andrew M. Cuomo, Governor of the State  of  New
York.

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