K735-2011 Actions

• Jun 17, 2011: adopted
• Jun 16, 2011: referred to calendar

K735-2011 Text

 ATIVE   RESOLUTION  memorializing  Governor  Andrew  M.  Cuomo  to
 im September 2011 as Charcot-Marie-Tooth Disease  Awareness  Month
  State of New York

 S, It is the custom of this Legislative Body to recognize official
 that  are  set  aside to increase awareness of serious issues that
  the lives of citizens of New York State; and
 EAS, Attendant to such concern, and in full accord with its  long-
 ng traditions, it is the sense of this Legislative Body to memori-
  Governor  Andrew  M. Cuomo to proclaim September 2011 as Charcot-
 Tooth Disease Awareness Month in the State of New York; and
 EAS, Charcot-Marie-Tooth disease (CMT) is one of the  most  common
 ted  neurological  disorders,  affecting  approximately 1 in 2,500
  in the United States; and
 EAS, The disease is named for the three physicians who first iden-
  it in 1886,  Jean-Martin  Charcot  and  Pierre  Marie  in  Paris,
 , and Howard Henry Tooth in Cambridge, England; and
 EAS,  CMT,  also  known as hereditary motor and sensory neuropathy
  or peroneal muscular atrophy, comprises a group of disorders that
  peripheral nerves which lie outside the brain and spinal cord and
  the muscles and sensory organs in the  limbs  known  as  neuropa-
  and
 EAS,  The neuropathy of CMT affects both motor and sensory nerves;
 cal feature includes weakness of the foot and lower  leg  muscles,
  may  result  in  foot  drop and a high-stepped gait with frequent
 ng or falls; and
 EAS, Foot deformities, such as high arches and hammertoes are also
 teristic of patients with CMT due to weakness of the small muscles
  feet; in addition, the lower legs may take on an "inverted  cham-
 bottle" appearance due to the loss of muscle bulk; and
 EAS,  Later  in the disease, weakness and muscle atrophy may occur
  hands, resulting in  difficulty  with  carrying  out  fine  motor
 ; and
 EAS,  Onset  of  symptoms  is  most  often in adolescence or early
 ood, but some individuals develop symptoms in  mid-adulthood;  the
 ty  of  symptoms  varies  greatly among individuals and even among
  members with the disease; and
 EAS, Progression of CMT symptoms is gradual; pain can  range  from
 to  severe, and some people may need to rely on foot or leg braces
 er orthopedic devices to maintain mobility; and
 EAS, Although in rare  cases,  individuals  may  have  respiratory
   weakness,  CMT is not considered a fatal disease and people with
 orms of CMT have a normal life expectancy; and
 EAS, It is imperative that there be greater  public  awareness  of
 erious health issue, and more must be done to increase activity at
 ocal, State and national levels to support the patients as well as
 families; now, therefore, be it
 LVED, That this Legislative Body pause  in  its  deliberations  to
 alize Governor Andrew M. Cuomo to proclaim September 2011 as Char-
 rie-Tooth Disease Awareness Month in the State of New York; and be
 ther
 LVED, That a copy of this Resolution, suitably engrossed, be tran-
 d  to  The Honorable Andrew M. Cuomo, Governor of the State of New