Bill S5436-2013

Creates a public umbilical cord blood banking program

Creates a public umbilical cord blood banking program within the department of health to promote public awareness of the potential benefits of public cord banking, to promote research into the uses of cord blood, and to facilitate pre-delivery arrangements for public banking of cord blood donations.

Details

Actions

  • Jan 8, 2014: REFERRED TO HEALTH
  • May 16, 2013: REFERRED TO HEALTH

Memo

BILL NUMBER:S5436

TITLE OF BILL: An act to amend the public health law, in relation to promotion of public umbilical cord blood banking

PURPOSE:To create a public umbilical cord blood banking program in New York State:

SUMMARY OF PROVISIONS: Section one establishes the umbilical cord blood banking program to promote research into the uses of umbilical cord blood. This section also requires the Department of Health to develop a public education and outreach campaign, via written materials, brochures, the internet and public service announcements to promote public umbilical cord blood banking awareness. The section also promotes research through public and private funding sources in the potential benefits of umbilical cord blood as a source of stem cells in the treatment of disease.

JUSTIFICATION: Umbilical cord research is rich in blood stem cells that can serve as a lifeline in treating many life-threatening diseases. Also, cord blood stem cells have been used to treat patients suffering from almost 50 disorders. For example, a study published in the November 24, 2004 issue of the New England Journal of Medicine confirms that stem cells derived from the umbilical cords of newborn babies are a viable and effective transplant source for thousands of leukemia patients who have no other treatment option. In October 2005, scientists in Korea claimed they enabled a patient who could not walk for the last 19 years to walk by using stem cells from umbilical cord blood.

Currently, there is only one not-for-profit cord blood bank in Manhattan thus a public umbilical cord blood banking program would enable more research and education for New Yorkers who need treatment.

PRIOR LEGISLATIVE HISTORY: 2012 - A.2519 - Held in Health Committee 2010 - A.2702 - Held in Health Committee 2008 - A.5081 - Held in Health Committee 2006 - A.9416 Held in Health Committee

FISCAL IMPLICATIONS: To be determined

EFFECTIVE DATE: This act shall take effect 180 days after it shall have become a law; provided, however, that effective immediately, the addition, amendment and/or repeal of any rule or regulation necessary for the implementation of this act on its effective date are authorized and directed to be made and completed on or before such effective date.


Text

STATE OF NEW YORK ________________________________________________________________________ 5436 2013-2014 Regular Sessions IN SENATE May 16, 2013 ___________
Introduced by Sen. HASSELL-THOMPSON -- read twice and ordered printed, and when printed to be committed to the Committee on Health AN ACT to amend the public health law, in relation to promotion of public umbilical cord blood banking THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. The public health law is amended by adding a new article 43-D to read as follows: ARTICLE 43-D PUBLIC UMBILICAL CORD BLOOD BANKING SECTION 4372. PUBLIC UMBILICAL CORD BLOOD BANKING PROGRAM. S 4372. PUBLIC UMBILICAL CORD BLOOD BANKING PROGRAM. 1. THE PUBLIC UMBILICAL CORD BLOOD BANKING PROGRAM IS HEREBY ESTABLISHED WITHIN THE DEPARTMENT TO PROMOTE PUBLIC AWARENESS OF THE POTENTIAL BENEFITS OF PUBLIC UMBILICAL CORD BLOOD BANKING, TO PROMOTE RESEARCH INTO THE USES OF UMBILICAL CORD BLOOD, AND TO FACILITATE PRE-DELIVERY ARRANGEMENTS FOR PUBLIC BANKING OF UMBILICAL CORD BLOOD DONATIONS. 2. THE DEPARTMENT SHALL: (A) DEVELOP A PUBLIC EDUCATION AND OUTREACH CAMPAIGN, VIA WRITTEN MATERIALS, BROCHURES, THE INTERNET, AND PUBLIC SERVICE ANNOUNCEMENTS TO PROMOTE PUBLIC UMBILICAL CORD BLOOD BANKING AWARENESS AND EDUCATION OF THE GENERAL PUBLIC AND POTENTIAL UMBILICAL CORD BLOOD DONORS OF THE BENEFITS OF PUBLIC UMBILICAL CORD BLOOD BANKING; (B) DEVELOP EDUCATIONAL MATERIALS AND BROCHURES WHICH SHALL BE MADE AVAILABLE TO THE GENERAL PUBLIC AND POTENTIAL UMBILICAL CORD BLOOD DONORS THROUGH LOCAL DEPARTMENTS OF HEALTH; HEALTH CARE PRACTITIONERS, INCLUDING OBSTETRICIANS, GYNECOLOGISTS, PEDIATRICIANS, AND MIDWIVES; HEALTH MAINTENANCE ORGANIZATIONS; HOSPITALS; CLINICS, WALK-IN MEDICAL CENTERS, MOBILE CARE UNITS, SURGI-CENTERS, AND URGENT CARE CENTERS; AND CLINICS AND ORGANIZATIONS SERVING PREGNANT WOMEN;
(C) COORDINATE AND PROMOTE PROFESSIONAL EDUCATION PROGRAMS FOR HEALTH CARE PROVIDERS ON THE BENEFITS OF PUBLIC UMBILICAL CORD BLOOD BANKING; (D) PROMOTE RESEARCH, THROUGH PUBLIC AND PRIVATE FUNDING SOURCES, IN THE POTENTIAL BENEFITS OF UMBILICAL CORD BLOOD AS AN ALTERNATIVE TO TISSUE TRANSPLANTATION AND AS A SOURCE OF STEM CELLS IN THE TREATMENT OF DISEASE; (E) DEVELOP CRITERIA, PURSUANT TO REGULATION, REGARDING THE APPROPRI- ATE COLLECTION AND STORAGE OF UMBILICAL CORD BLOOD FOR PUBLIC BANKING; THE IDENTIFICATION OF BLOOD BANKS AND THE AREA SERVED BY EACH SUCH BLOOD BANK; THE ADEQUACY OF SAFEGUARDS IN PLACE AT SUCH BLOOD BANKS TO ENSURE THE SAFE COLLECTION AND STORAGE OF UMBILICAL CORD BLOOD; AND PROVISIONS FOR ARRANGEMENTS BETWEEN SUCH BLOOD BANKS AND HOSPITALS, INCLUDING CERTIFICATION OF BLOOD BANK PERSONNEL, DESIGNATION OF RESPONSIBILITIES AND LIABILITIES BETWEEN SUCH BLOOD BANK PERSONNEL AND HOSPITAL PERSON- NEL; AND ANY OTHER PROVISIONS NECESSARY TO ENSURE THE SAFETY OF THE MOTHER, HER CHILD, ANY SUCH PERSONNEL IN ATTENDANCE AT THE DELIVERY AND/OR THE UMBILICAL CORD BLOOD COLLECTION SITE, AND THE STORED UMBILI- CAL CORD BLOOD; AND (F) ESTABLISH A STATEWIDE TOLL-FREE TELEPHONE NUMBER TO RECEIVE REQUESTS FOR INFORMATION AND TO DIRECT POTENTIAL UMBILICAL CORD BLOOD DONORS TO AVAILABLE PUBLIC UMBILICAL CORD BLOOD BANKS SERVING THE AREA IN WHICH SUCH POTENTIAL DONOR RESIDES OR IS PLANNING TO DELIVER. 3. THE COMMISSIONER SHALL ACCEPT AND EXPEND ANY GRANTS, AWARDS, OR OTHER FUNDS OR APPROPRIATIONS AS MAY BE MADE AVAILABLE FOR THE PURPOSES OF THIS ARTICLE, SUBJECT TO LIMITATIONS AS TO THE APPROVAL OF EXPENDI- TURES AND AUDIT AS PRESCRIBED FOR STATE FUNDS BY THE STATE FINANCE LAW. S 2. This act shall take effect on the one hundred eightieth day after it shall have become a law; provided, however, that effective immediate- ly, the addition, amendment and/or repeal of any rule or regulation necessary for the implementation of this act on its effective date are authorized and directed to be made and completed on or before such effective date.

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